This isn't Emma's first bath, but it is my first time bathing her.
She loved to be all clean.Because of the hole in Emma's heart, their is too much blood flowing through it and into her lungs which is now causing her breathing to speed up, especially when she eats by mouth. This is just what they expected to happen. Luckily there is a medicine they can give her that will help. There is still a chance the hole could close on its own, but if it doesn't they would wait until she is at least 6 months old to surgically fix it. She could even go as long as 2 years on the medicine before surgery. The downside is that we had to go back to tube feeding today while all the respiratory stuff is figured out. Hopefully we will be able to get back on track with the mouth feedings soon to get her home. She had a pretty good night last night with bottles, but her breathing rate increased so much each time that they wanted her to take a break and recover today.
Also, before we can take Emma home, there is a list of things Shawn and I must learn from the nurses. We have to be able to catheterize her once a day, change her bandages, clean and monitor the wound and pass an infant CPR course. There are probably lots of other things we have to pass off, but I haven't got a list in front of me.
We want to thank all of you for your thoughts and prayers. Thank you to all those at Provo Craft for the food and support. It has been so nice that Shawn can get away from work in the afternoons and spend time with Emma and me. We can't wait for more of you to meet her and feel of her special spirit!