Emma has upgraded to wireless!!
We finally get to dress her in her very own clothes. :)
The rainy drive home, she slept the whole way.
In her nursery at last.
"Nurse Julie" getting all her evening medications ready. (Don't worry... those are just syringes to put into her feeding tube, not needles for shots!)
Shawn and I have had permanent smiles all day long. We have loved having Emma home with us ALL DAY (well, we got discharged from Primary Children's at about noon). Yes, now the hard part of taking the night shifts begins, but bring it on. Luckily my mom is staying with us for a few days to help. I've got lots of follow-up appointments scheduled with each of Emma's many doctors so that they can continue to monitor her progress, meanwhile we'll just keep doing what we have been doing pretty much -minus the hospital! Unfortunately we still can't have anyone under 18 years old hold her yet since it's still RSV season and we have to be VERY careful that she doesn't get sick, especially before her shunt surgery which may or may not be in a couple of weeks. Because of all that our sweet girl has been through these last four weeks and all of her internal problems (heart, lungs, brain fluid, spine, etc.) she is very susceptible to getting sick. The last thing we want is for her to head right back to the hospital.
Well, I will still probably post when we find out when her surgery will be or if there are any other major changes... and of course to share extra cute pictures. Otherwise, this will probably be the last of the frequent updates. Once again, we cannot thank everyone enough for your unending love, prayers, and support!!