Wednesday, April 20, 2011


Emma has upgraded to wireless!!

We finally get to dress her in her very own clothes. :)

The rainy drive home, she slept the whole way.

In her nursery at last.

"Nurse Julie" getting all her evening medications ready. (Don't worry... those are just syringes to put into her feeding tube, not needles for shots!)

Shawn and I have had permanent smiles all day long. We have loved having Emma home with us ALL DAY (well, we got discharged from Primary Children's at about noon). Yes, now the hard part of taking the night shifts begins, but bring it on. Luckily my mom is staying with us for a few days to help. I've got lots of follow-up appointments scheduled with each of Emma's many doctors so that they can continue to monitor her progress, meanwhile we'll just keep doing what we have been doing pretty much -minus the hospital! Unfortunately we still can't have anyone under 18 years old hold her yet since it's still RSV season and we have to be VERY careful that she doesn't get sick, especially before her shunt surgery which may or may not be in a couple of weeks. Because of all that our sweet girl has been through these last four weeks and all of her internal problems (heart, lungs, brain fluid, spine, etc.) she is very susceptible to getting sick. The last thing we want is for her to head right back to the hospital.

Well, I will still probably post when we find out when her surgery will be or if there are any other major changes... and of course to share extra cute pictures. Otherwise, this will probably be the last of the frequent updates. Once again, we cannot thank everyone enough for your unending love, prayers, and support!!


Brittney Richards said...

YEAH!!! I'm so glad that she finally gets to come home. What a relief. She'll probably progress a lot more now that she is home - or maybe she won't know the difference. I'm super glad that you don't have to stay in the hospital any longer. They're nice to have, but not a place you want to call home.

McKenzie Johnson said...

What great and exciting news! I hope all continues to go well with Emma so you can have her home for good!

Tannie Datwyler said...

Oh Julie!! Congratulations - that is so wonderful

Jen J said...

Yahoo! Let the fun begin!!! :)My favorite part was actually the late night feedings. Eveything is so peaceful and its just you and that precious angel. Good luck!

The Reimers Family said...

Yay!!!! I am so happy that you can all be home together and start your "normal" life as a family! Keep smiling and enjoying you precious Emma. Love you!
BTW You are looking pretty darn good for recently having a baby Nurse Julie.

Lori B. said...

Julie and Shawn,
I am SO happy to know you have your sweet baby girl at home at long last! Julie, you look GORGEOUS and so happy. Shawn, do we get to see more photos of the happy Daddy? I loved seeing Emma in the outfit I gave you, and I am glad you are such a good driver. Way to get her home safely in the rain!! Love, "Aunt" Lori with "Cousin" Benson sitting on my lap :)

JustnAsh said...

Yay! What happy news. I'm sure you are both relieved. It must be nice to finally bring her home to that most adorable nursery you created for her. I bet she is a great accessory to the room ;)